Information Collection and Use
We collect information through our online contact form, which is authorized by you when you voluntarily provide this information. We require that you provide us with certain specific personal information while also offering you choices for providing other information. You may decline to provide us with the required information, although our online contact form may not function properly as a result. Providing the required information enables us to contact you with tailored information we provide back to you. We do not disclose personally identifiable information to third parties under any circumstances. Any contact, whether through the online form, phone calls, letters or any other means are recorded in a secure database. This database is used to collect and provide aggregated, non-personal information to funding organizations for grant purposes and to our Board of Directors. The provided information does not identify users, their contact information or personal medical informaton and is collected as statistical information only. We strictly adhere to the National Standards to Protect the Privacy of Personal Health Information.
Protecting Your Personal Information
We protect your personal information by limiting access to employees who have a reasonable need to view it.
We have physical, technical, procedural and contractual safeguards in place to protect your personal information.
Know who you are giving your information to. You can protect personal information by providing it to entrusted sites. We provide you with additional ways of contacting us, either through our phone number or address listed on our contact form. We also provide you with several links to our other sites where you can learn more about us.
Email Communication and Website Usage
Email communication will be initiated by you when you conact us either through our email address or our online form. All email communications are directed to the mailbox of our Foundation staff. Your email address will only be used by the Foundation staff to contact you regarding a request you have made. We do not sell email addresses, nor will we contact you for any other reasons unless you have made a specific request.
Our mission is to provide you with accurate and current information. We do not have advertisements, sponsorships or links to any products on our site. We do not endorse products, services or companies on our site; rather, we offer 3rd party links for perusal by site visitors looking to expand their knowlege of various community services.
Content and Editorial Policy
We ensure the content on our site is accurate. Content is created by our staff and also provided throughout the medical and professional community. A link to another site does not imply approval or endorsement of material on that site.
All phone calls and form information will remain confidential as pursuant to the United States Health Insurance Portability and Accountability Act of 1996 (HIPAA). If you are calling or use any other form of correspondence to learn more about our Foundation, your request will remain confidential.